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Cross-Cultural Research Hub on Intellectual Disability

Cross-Cultural Research Hub on Intellectual Disability

Hello from Amsterdam

Hello from Amsterdam

Through more than a decade of ethnographic research with people with intellectual disabilities in Europe and South Asia, I have become convinced that deeper qualitative research across cultures holds the key to a richer understanding of the lives of these individuals and the issues they face.

There is limited research in this area to date, and it is scattered across disciplines, contexts, and institutions. I created this hub as a way to bring together researchers to:

  • collect and curate the disparate research that already exists
  • conduct new comparative ethnographic research
  • develop the networks and resources needed for future research and applied work in the field

Across different projects, 20+ researchers are now working together on the big questions facing the field:

  • How does caregiving for people with ID vary within and between cultures?
  • How is caregiving differently supported by welfare, healthcare, and specialist services across societies?
  • What life-paths are available to people with intellectual disabilities in different cultural contexts?

You are warmly invited to make use of our projects, resources, and events. We welcome you to get in touch, especially if you are interested in contributing to, funding, or partnering with us.

Dr Patrick McKearney

Department of Anthropology

University of Amsterdam

Contributors

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Patrick McKearney (he/him) is an Assistant Professor in social anthropology at the University of Amsterdam researching intellectual disability across cultures. His teaching  concentrates on the contribution of ethnographic research o debates about religion, health, disability, psychology, and ethics. He has conducted ethnographic projects with adults with intellectual disabilities in India, the UK, and Italy. Currently, he is focused on extending his longitudinal study of intellectual disability in Kerala and developing research infrastructures and connections for intellectual disability across the Global South.

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Priyasha Choudhary (she/her) is a researcher exploring the intersections of disability, gender, sexuality, and care in India. She is a part-time Research Assistant at the University of Amsterdam and has worked as a Research Associate at IIT Hyderabad, contributing to projects on intellectual disability, gender, and long-term care. Trained in social science, she draws on critical disability studies, medical anthropology, kinship, and feminist ethnography to examine how ableism and patriarchy shape care and kinship. Her research is guided by critical and rights-based perspectives, centring lived experiences and feminist methodologies.

SL

Sanne Lukkien (she/her) supports the Dutch Coalition on Disability and Development (DCDD) as a Communications Assistant, where she focuses on ethical storytelling and amplifying voices often overlooked in development debates. She develops evidence‑based communication materials that translate insights from research and lived‑experience into accessible outputs for policymakers and partners. She strengthens rights‑based policy engagement by improving accountability, supporting evidence uptake, and helping stakeholders reach more equitable and inclusive outcomes.

SV

Sabeer VC (he/him) is a researcher at the intersection of international migration, trade, and development. He is currently a Research Associate at the Indian Institute of Foreign Trade (IIFT), New Delhi, and was previously a Visiting Researcher at the Kiel Institute for the World Economy. With an MA and MPhil in applied economics, his work applies rigorous quantitative analysis to large-scale national and international datasets to examine how migration and trade shape development outcomes and generate policy-relevant insights. He also assists Patrick McKearney with ethnographic work in Kerala.

BB

Benedek Bozó (he/him) is a graduate of the University of Amsterdam’s Medical Anthropology and Sociology programme. His research interests center on cognitive disabilities and the anthropology of childhood, with a focus on how young people navigate life-altering adversities in post-socialist welfare systems. Following his ethnographic work with Roma children in state care and homeless substance users in Hungary, he is now turning his attention to the everyday ethical practices of children with Special Educational Needs and their caregivers within the Hungarian care system.

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Angela Rodriguez Almaz (she/her) is a master's student in Global Health Research at Vrije Universiteit Amsterdam. Currently developing her thesis on the experiences of caregivers in handling compulsive eating tendencies of people with Prader-Willi Syndrome (PWS) in Mexico. With a transdisciplinary design and in collaboration with Mexican NGO Fundación Maria José, the project focuses on understanding how cultural values and family dynamics influence the management of PWS.

WD

Warren Walker Dansou (he/him) is a master's student in Global Health Research at Vrije Universiteit Amsterdam. Currently developing his thesis on the experiences of caregivers in the management of children with Prader-Willi Syndrome (PWS) in West Africa (Côte d’Ivoire, Nigeria, Ghana, and Cameroun). With a transdisciplinary design and in collaboration with IPWSO, the project meets at the intersection of sociocultural norms, expectations, and lived experiences and systemic support in the management of PWS from early prognosis throughout a child’s transition into adulthood.

Research Partners

PROFESSOR TONY HOLLAND (she/her) supports the Dutch Coalition on Disability and Development (DCDD) as a Communications Assistant, where she focuses on ethical storytelling and amplifying voices often overlooked in development debates. She develops evidence‑based communication materials that translate insights from research and lived‑experience into accessible outputs for policymakers and partners. She strengthens rights‑based policy engagement by improving accountability, supporting evidence uptake, and helping stakeholders reach more equitable and inclusive outcomes.

Funders

This project is supported by the University of Amsterdam